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Meet Susan Honaker
Hi, let me introduce myself. I’m Susan, a mom who knows what it feels like to search for answers in the middle of uncertainty. My son’s epilepsy journey has taught me hard lessons, beautiful lessons, and everything in between. I created this platform to give other parents the guidance, clarity, and support I desperately needed when we first started. You’re not alone—and together, we can navigate this journey with strength and confidence.
Favorite Quote:
“When a flower doesn’t bloom, you fix the environment in which it grows, not the flower.”
I’m also a mom of eight, one in heaven and seven here on earth who keep my heart full and my days busy. Our epilepsy journey centers around our son Jayden, who began having seizures that completely changed the rhythm of our lives. We’ve had nights of fear, days of searching for answers, and moments where all I could do was sit beside him and pray. We’ve also found strength we didn’t know we had, a deeper kind of love, and a fierce determination to learn everything possible to protect and support him. If you’re walking a similar road, you’re not alone. I’m right here with you, sharing what I’ve learned, what I’m still learning, and all the hope that keeps us moving forward.
A parent’s love doesn’t stop the seizures, but it gives the child strength they can feel.
Epilepsy has a way of shaking the ground beneath your feet, but it also teaches you just how strong you really are.
Every storm we face brings new courage, and every sunrise after reminds us that hope is still alive and working.
On the hardest days, when fear tries to take over, we learn to breathe deep, lean into faith, and keep standing.
This journey isn’t about being fearless, it’s about finding strength in the trembling, grace in the unknown, and a light that guides us forward no matter how dark the night feels.
You are stronger than you think, and you never walk this path alone.
Click each picture bellow to find information, help and funding for epilepsy and epilepsy monitoring devices.
Click on the picture below to be taken to YouTube to watch the Seizure Recognition and Response Training Video
I'm Giving You $500 Towards a New Storm Shelter!
This is a time lapse video of the installation of my friends shelter from My Oklahoma Storm Shelter. As a way to say thank you for their amazing work and for them allowing me to make the offer below, I am sharing this video with you!
I am so excited to be teaming up with My Oklahoma Storm Shelter to be able to offer you $500 off the listed price of any shelter the MOSS offers! Click the link below the video, fill out the info, and your certificate will be on its way!
How Our Life Has Changed
I have become a fierce advocate for my child and our family because of his epilepsy journey. Losing my son in 2005 to Sudden Infant Death, left deep scars, and when I learned that epilepsy carries its own risks including the terrifying possibility of SUDEP, my PTSD was triggered intensely. I have used that fear and grief to become my son's advocate, ensuring he has the care, safety, and support he needs.
I still have moments when I need to retreat to my room, turn on music, crawl into a quiet space, and let the tears flow. Then I pick myself up, wipe my face, and keep going. Our family has found ways to support each other and our son/brother together.
With a letter of medical necessity from our neurologist, and after multiple electronic epilepsy devices failed, we have started the process of obtaining a service dog. We recently welcomed a German Shepherd puppy, and we are working on bonding and training her to assist with seizures. She is already a source of comfort, and our family works together to monitor, respond, and support. Though the process is challenging and expensive, we are committed to finding the best solution.
Nighttime seizures require vigilance, and we have routines in place to provide comfort and safety. Some his siblings assist directly, while others needed space at times due to fear and anxiety and that’s okay. We have also implemented alarms and other systems throughout our home so everyone knows how to respond if a seizure occurs. The whole family has taken a class to know how to respond during a seizure.
Our son’s journey has tested us all, but it has also brought our family closer, strengthened our advocacy, and taught us resilience. Life is now a delicate balancing act, trying to maintain a sense of normalcy, ensuring our child doesn’t feel too different, and making sure each member of our family receives the love, attention, and support they deserve. Every day is a mix of vigilance, care, and small victories, and we strive to create an environment where our children can thrive while the whole family stays connected and supported.
© 2025 Susan Honaker, LLC
